RESEARCH

ABSTRACT

This study explored the coping strategies of families with patients diagnosed with Hirschsprung’s Disease. Interviews were conducted with two participants who shared their coping strategies, struggles, and experiences in caring for their child with the disease. The data collected from the interviews were organized into themes, including challenges faced by families, coping strategies, navigation of the healthcare system, social support, and finding meaning and purpose in caring for a child with Hirschsprung’s Disease. The findings shed light on the impact of the disease on families, including their understanding of the condition, effects on daily routines, emotional well-being, and quality of life. The study highlighted the importance of providing families with comprehensive information and education to help them comprehend the challenges associated with the disease. It also emphasized the need for support and resources to assist families in navigating challenges, especially during times of crisis. The study revealed disruptions and challenges in managing care and the financial burden imposed by the disease, underscoring the importance of practical support and resources. The emotional well-being and quality of life of families were significantly affected, emphasizing the need for comprehensive support, including counseling and mental health resources. The study also highlighted challenges in accessing appropriate healthcare facilities and understanding necessary care practices, emphasizing the importance of accessible and affordable healthcare services and educational resources. The level of support and resources available to families varied, highlighting the need for accessible and approachable healthcare professionals who can offer emotional support and guidance. Overall, the findings underscore the importance of providing families with comprehensive support, education, and resources to improve their understanding, daily routines, emotional well-being, and ability to navigate medical care and access support networks.

KEYWORDS

Challenges, Coping Strategies, Hirschsprung’s Disease

CITATION

Llanto-Brusola, L. (2025). LEADERSHIP COMPETENCIES AND RESILIENCIES OF SCHOOL ADMINISTRATORS: BASIS FOR IMPROVED ORGANIZATIONAL PERFORMANCE AND GOVERNANCE [Zenodo]. In GET INTERNATIONAL RESEARCH JOURNAL (Vol. 3, Number 4, pp. 203–316).
https://doi.org/10.5281/zenodo.17918437